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'Utterly catastrophic' — life with frontotemporal dementia
'Utterly catastrophic' — life with frontotemporal dementia
'Utterly catastrophic' — life with frontotemporal dementia
Saturday 26th February 2022
Discover the impact of frontotemporal dementia through personal stories and scientific insights on 'All In The Mind'.
29 minutes
Informative
Compassionate
Thought-provoking
Raw
Engaging
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Mindfulness & Emotional Wellbeing
Mindful Recovery
Sexual Stigmas & Myths
Mindfulness & Technology in Health
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Get the buttons here!Living with Frontotemporal Dementia: Personal Stories and Scientific Insights
Well, the effects on our lives have been catastrophic. It's so cruel, so unrelenting, so difficult to deal with.
Imagine facing a disease that's not only difficult to diagnose but also has no cure. This episode of 'All In The Mind' dives deep into the world of frontotemporal dementia (FTD), a rare and relentless condition. Host Lynne Malcolm brings you the voices of those living with FTD, their families, and the researchers dedicated to understanding this complex disease. Mark Ferguson, whose wife Jill suffers from semantic dementia, a subtype of FTD, shares his heart-wrenching journey.
He describes the impact on their lives as 'catastrophic', emphasizing how cruel and unrelenting the disease can be. The episode also sheds light on the diagnostic challenges of FTD, which often goes undetected for years due to its intricate symptoms. Despite these hurdles, researchers like Professor Olivier Piguet from the FTD Clinical Research Group at the University of Sydney are working tirelessly to find answers.
If you're curious about the real-life experiences of those affected by FTD and the ongoing scientific efforts to combat it, this episode offers a compelling and empathetic look into their world.