Steve Johnston's Mission: Fighting Blindness with Love and Determination
Episode Overview
Steve shares his journey of coming to terms with his son's diagnosis and fundraising for a clinical trial As a physician, Steve provides unique insights into the challenges of dealing with a rare disease He showcases the power of putting personal differences aside for the sake of their son and the nonprofit From a lemonade stand to training for an Ironman, Steve's story embodies resilience, hope, and community support His experiences exemplify the unwavering determination to make a difference and find hope in the face of adversity
You can't control what happens to you. You can only control the way you react to things.
Picture this: your child is losing their sight to an incurable disease, and you're racing against time to find a cure. Steve Johnston knows this struggle all too well. In this heartfelt episode, host Dan Karaty sits down with Steve to talk about his son’s battle with retinitis pigmentosa, a rare condition that's slowly stealing his vision. But Steve isn’t just sitting around feeling sorry for himself; he's taking action in ways that are nothing short of inspiring.
From starting a nonprofit to fund research to training for an Ironman, Steve's journey is a testament to the power of a father's love and the lengths he'll go to for his child. He also opens up about the complexities of co-parenting with his ex-wife and how they’ve put their differences aside for the sake of their son and their cause.
This episode dives deep into the emotional rollercoaster of dealing with a rare disease, balancing professional and personal life, and finding hope in the face of seemingly insurmountable challenges. If you’re looking for a story that blends resilience, community support, and unwavering determination, you won't want to miss this conversation.