Ainc
Audio Info Network of CO
Usher Syndrome Part 2
Usher Syndrome Part 2
Usher Syndrome Part 2
Friday 10th February 2023
Bill Lundgrin, Nancy, and Jonathan Price discuss treatments, tools, and community support for those living with Usher Syndrome on 'Blindsight'.
29 minutes
Informative
Supportive
Empowering
Hopeful
Compassionate
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Mindfulness & Emotional Wellbeing
Sobriety Toolkit
Navigating Intimate Relationships
Navigating Challenges in Recovery
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Get the buttons here!Navigating Life with Usher Syndrome: Insights, Tools, and Community Support
As a mental health person as I am, I want to build bridges to get people out of the isolation, and I'm always looking for ways that I can get people to be able to be themselves and to be with other people who know what they're going through or at least have a sense of what they're going through.
Living with Usher Syndrome comes with its unique set of challenges, but it doesn't have to be a journey taken alone. In this episode of 'Blindsight', host Bill Lundgrin teams up with Nancy and special guest Jonathan Price, a speech pathologist and former employee of the Helen Keller National Center, to dive deep into the world of Usher Syndrome. If you’ve ever wondered about the practical side of managing this condition, this conversation is for you.
They kick things off by discussing the Usher Syndrome Coalition's registry, which connects those affected to research opportunities and a broader community. Jonathan passionately shares his mission to break down the barriers of isolation for individuals with Usher Syndrome. He highlights various technologies and resources that can make a significant difference in daily life, from devices that enhance communication to tools that provide better navigation through the world. The episode also underscores the vital role of community and support networks.
Jonathan emphasizes, 'I want to build bridges to get people out of isolation, and I'm always looking for ways that I can get people to be able to be themselves and to be with other people who know what they're going through or at least have a sense of what they're going through'. Whether you're directly affected by Usher Syndrome or looking to support someone who is, this episode offers valuable insights and practical advice.
Tune in for an engaging discussion that promises to leave you feeling informed and connected.