Philomena's Legacy: A Family's Fight Against Childhood Cancer
Episode Overview
Mina and Mark Stendardo share their daughter Philomena's battle with DIPG and the inspiration behind The Storm The Heavens Fund The community's overwhelming support and continuous efforts to raise awareness and funds for DIPG-specific research The mural dedicated to Philomena captures her ferocity and the bonds she shared with her community The family's unwavering determination to keep Philomena's legacy alive and their fight to defeat DIPG Insight into the impact of Philomena's passing and the family's journey of grief, hope, and resilience
I still don't know what my purpose is and I don't want to pretend to know God's plan because every time I think I figure it out he reminds me that he's God and I'm not.
Imagine facing the unimaginable: your child diagnosed with a rare, aggressive brain cancer. This is the reality Mina and Mark Stendardo faced when their daughter, Philomena, was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG). In this heartfelt episode of THE LOFT, hosted by Kev Nichols, Mina and Mark open up about their journey through grief, hope, and relentless determination to honour Philomena's legacy.
They share how The Storm The Heavens Fund was born from their love for Philomena and their drive to make a difference in the world of childhood cancer research. The fund has already generated over a million dollars for DIPG research, demonstrating the power of community and the impact of their efforts. You'll also hear about the beautiful mural created by artist Jordan Spector, which captures Philomena's spirit and the love she shared with those around her.
This episode is not just a story of loss but one of unwavering strength and the enduring human spirit.