NOFASD Australia
NOFASD Australia
#09 Lived Experience 02 with Sue
#09 Lived Experience 02 with Sue
#09 Lived Experience 02 with Sue
Wednesday 7th October 2020
Sue's journey to diagnose her daughter's FASD reveals the struggles families face and the importance of early support.
20 minutes
Informative
Hopeful
Compassionate
Supportive
Engaging
About this podcast
Author:
NOFASD Australia
Overview:
Categories:
Navigating Alcohol Dependency
Family Recovery from Addiction
Stigma & Social Perspectives
Financial Health in Recovery
Nutritional Pathways to Recovery
Links:
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Episodes:
42 (View all)
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Get the buttons here!A Mother's Fight: Unraveling the Mysteries of FASD
If anyone gets one message from us, it's that one. So what I really want people to understand and acknowledge is that we live in a culture where social drinking is part of the fabric of our daily lives, and if we are to protect our children and our society as a whole, we need to understand the consequences of that and to support women who may be pregnant to negotiate that environment.
Sue's journey as a mother is both heart-wrenching and inspiring. In this episode of 'Pregnancy and Alcohol: The Surprising Reality', she opens up about her relentless pursuit to get a diagnosis for her daughter, Jessica, who lives with Fetal Alcohol Spectrum Disorder (FASD). FASD, often overshadowed by other conditions like autism, remains a largely misunderstood and under-discussed topic despite its prevalence.
Sue recounts the myriad challenges they faced—from Jessica's struggles with basic tasks to the social isolation and chronic health issues that plagued her for years. Her story is a powerful reminder of the importance of compassion, understanding, and support for pregnant women in a society where social drinking is so common. The episode also highlights the crucial role of organizations like the National Disability Insurance Scheme (NDIS) and NOFASD Australia in raising awareness and providing support.
Sue's narrative not only sheds light on the daily hurdles faced by families dealing with FASD but also emphasizes the need for early diagnosis and comprehensive care. Listeners will walk away with a deeper understanding of FASD and the profound impact it has on children's lives. This episode is a must-listen for anyone looking to grasp the realities of this condition and the resilience of those who navigate it every day.